READERS WE HAVE LANDED IN WASHINGTON, AND THE GOVERNMENT STAFF ARE FOLLOWING "ROBIN LYNN'S

Readers, the group home operator opened a new group home yesterday. Since they issued a discharge order for Robin Lynn they have been trying to move meeting dates to prior to this celebration, to get Robin Lynn out before it opened, because as they've stated "the opening will require all staff hands on deck." Why have they continued to harm Robin Lynn emotionally, threaten her future placements by continuing to add more and more to her contaminated medical records? Because the higher "powers" of DDS continue to pamper and cover for them, rather than serve Robin Lynn, by forcing them to do the right thing. I will continue to do a record dump at this site every day that they allow this dangerous travesty of protecting the well being of Robin Lynn continue. Please call and leave a message for: 1) Connecticut Governor, Dannel P. Malloy Telephone: 860 566 48402) Connecticut Comissioner, DDS Department of Developmental Services, Jordan A. Scheff Telephone: 860 418 6009. NOTE: HERE IS THE NEW/PERMANENT LINK TO THE BLOG:

robinlynsjourney-helpherwin.com

HERE IS OUR RECORD DUMP FOR TODAY, AS GUARDIAN I HAVE TRIED TO CORRECT THIS FOR SO LONG, AND GONE UNHEARD BY THE HIGHER STAFF LEVELS OF DDS, AND RECENTLY THE GOVERNOR. PLEASE EVEN IF YOU HAVE CALLED BEFORE, CALL AND LEAVE A MESSAGE AGAIN.

February 5, 2018

TO: (DDS Staff Names Removed) Readers, it is my belief -MINE -from what I have

observed,that these two levels of DDS do the right thing, but are hampered by the staff levels above them, that seem to what to cover for the group home operator.

RE: UPDATE OF CONCERNS – REQUESTING THAT CONTENTS OF

THIS DOCUMENT REMAIN CONFIDENTIAL AND NOT BE

SHARED WITH (Group home operator's name removed.)

It has been a long year, and we are approaching another yearly planning meeting for Robin. As her guardian I am genuinely concerned for the disregard by all parties, of bringing a conclusion to the issues of last year’s plan, and a plan that will truly, medically, and emotionally serve Robin. My efforts with two court hearings have been wasted, regardless of the resulting orders. I have obtained the hospital records and am frustrated by the manner in which regards both my role, and facts as to what occurred in court. The following was recorded into the hospital records by Jean Thompson, Case Management: “Spoke with K A (name removed), RN for the group home. She said that the pt has had 18 falls within just several weeks. The staff at the house has been meeting with a behaviouralist re. the pt. Kathy said there was a probate hearing to discuss a guardian to succeed the mother as she is older. The hearing was derailed by the discussion about behavior vs SZ. But Kathy was clear that there was NO statement by the court re. which doctors treat the pt.” To my knowledge, Archer was in the court room. Note: Readers, this response from the nurse about the purposed of the hearings was ever about change of guardian, was just a lie, and reflects the attitude of the group home operator.

(Group home operator name removed along with staff names that follow) staff, assistant group home manager and S., delivered Robin to the hospital, despite having been in the court room, and gave the following history: “History was obtained mostly from her caretaker who was in the room by the time of my evaluation as the patient is unable to provide meaningful information. According to the caretaker the patient has experienced multiple falls of heterogenous nature that includes behavioral-induced, mechanical and some episodes of seizure activity that the staff at the group home knows well. The patient was recently seen by her neurologist (Dr. T) who increased her Keppra dose to 1250 mg BID. This morning the patient sustained an unwitnessed fall while the patient was in the toilet. When the staff arrive to assist her did not noticed fecal or urinary incontinence, not post ictal period was described and there was no loss of consciousness. For this reason the patient was brought to the emergency department for further evaluation. Last fall was sustained 3 days prior while walking to the Van. It was felt mechanical. In total, her caretaker believes she has fallen 19 times since October. There has been many other instances in which the patient sustain falls when other members of the group are being assisted by the staff. Those particular episodes are believed to be related to attention seeking behavior.” Note: Readers: The group home operator allowed Robin to fall 19 times, ignored the DDS training regarding drop seizures the facts of their own day reports, and gave this information. It should be noted that the same two staff people - pushers of "attention seeking behavior falls" were again the reporters for Robin. Their names litter the documents of this mess.

(Group home operator's name removed) own records, you both have all of them, speak to wobbly numerous times, by their own staff shortly after court, certainly up to the hospitalization. Your recommended training of all of the staff that deal with Robin, and seizures speaks to episodes with no rigidity, lack of unconsciousness, etc., and yet even Dr. T's latest report says: “Her staff member reports that typical seizures are characterized by body stiffening with unresponsiveness for a few seconds usually without drop attacks. Dr. T’s records before, after court, up to this day speak to “behavioral interventions are in progress for behaviors.”

The day by day records, both at (Group home name removed) House and (Group home operator name removed) day program contain the same words “wobbly”, etc., no notes that include behavior, and after the court hearing Robin is taken to Dr. S and Zephra (sp) is increased. What right did (Group home operator name removed) have to deliver Robin to his office, and report all the falls as behavioral? Robin called me on that day, and was concerned that she was falling, and yet she got in her words “two more pills that could make her fall more.” In the mean time, I check the drug out for myself, and yes it does cause more falls. Despite that (Group home operator) takes her into S’s again, five days before the hospitalization, and the assistant house manager notes say she confessed. Really? Robin states later, that they said she did good when she said that! Much later, I’m talking to Robin, and she isn’t going to her recreation program which she had been excited about earlier, she tells me she won’t be going, and says her medication is the problem, a voice is talking in the background, and says that’s not right, and Robin asks the staff person, T to tell me what it is, and she states that Robin is wobbly. Her conversations are monitored, and Robin depends on staff to tell her what is the right answer. Perhaps, staff will say she did well again. I talk to you during the hospitalization (DDS staff person name removed), and you exclaim “WHAT” when I refer to that visit to S’s office, and say things like “they (group home operator) doesn’t get it. How, do we get to meetings, with court sessions, court orders, and the DMR negotiating with(group home operator), to change the daily reporting documents to a place that removes any picture of what is happening day to day, to a new document of recording that allows (group home operator) to remove pertinent fact of incident, and move falls into the behavioral column? For instance, on a fall recorded on the old forms, they speak to an incident where Robin has a fall plugging in the vacuum cleaner while staff is dancing with other residents. The new record records that staff is dancing with a resident, and Robin falls. Robin has tasks, it maybe poor judgment for her to vacuum while they are dancing, but she is also told unknowingly by me, that she can’t make her last call to me until her work is done.

I have tried to meet the requirements of the agreement that we have verbally made. I don’t have records from my (group home operator name) contacts – as requested of D over a month ago. I have reviewed your new protocols as established by LS, (NOTE THE FAMOUS DON'T CALL L) Program Author, and they offend me, in trusting that we were all looking out for Robin. I have come to feel that I’m not being leveled with, but that DMR is placating (group home operator), to keep Robin’s place at (group home). The court order says that I am guardian, and Robin remains at (group home), someone needs to level with me pretty soon. Is (group home operator) threatening to kick her out if DMR doesn’t approve, and make these adjustments to prove something that they ended up in court for? NOTE: No one answers that question, but when the group home operator self investigates medical neglect resulting in injury to Robin Lynn - which DDS disgustingly allowed) they issue a discharge order for Robin Lynn to remove her from her group home of 20 years!)

I received documents to sign in Robin’s behalf, from (group home operator name) this weekend. One stands out, and causes reflection – RESIDENTIAL CONFLLICT RESOLUTION”. “If you or your family member ………..have been treated unfairly, or if you or they have a complaint, the following steps should be taken. 1) Talk the problem over with the staff who support you……….These people may be able to help you quickly.” Done, as witnessed by all verbally during the last annual planning meeting, and with D, and the (group home operator name) nurse after. I also sent several emails to all those present immediately following the meeting. (DDS staff person name removed.) was copied. 2) Next we go to the House Manager – done, see above. 3) Go to department head. The Dept. Head will respond within five days. Done –(CB group home operator housing manager) was sent all the emails, and hadn’t responded in two weeks. 4)Next the Executive Director will gather information, and the problem will be resolved in 10 business days. Done – the Executive Director was sent all of the emails. No response – ever, nor did she appear in Court for the first hearing, and was ordered in by the judge for the second. 5) File “Administrative Program Review” with DMR. Done – (DDS staff person name removed.)received all the emails. He responded, and I kept him informed right up to filing my 3 year probate court mandated report, that included the issues.

(Group home operator) Resident’s Rights Statement # 17: “you have a right to talk to the Human Rights Committee about of of your complaints”. Not done. Please provide contact information.

On Thursday, March 1st., I called Dr. P’s (orthopedist who specializes in cerebral palsy) office and arranged a conference call for end of day. He called at about 4:00 PM. I explained to Dr. P that I had dealt with Robin’s disability for 42 years, and due to recent concerns was evaluating a lot of things. Robin had gone from a Special Olympic athlete who had run the 400 meter, and was named Regional Athlete of Year, to a person that a judge recently said, “Robin has a lot of reasons to fall.” I was trying to evaluate as a mom and guardian what was happening to Robin. I had stayed abreast of all literature regarding cerebral palsy, seizures, related meds, and articles on the aging – early aging such as arthritis in cerebral palsy patients. I said Robin had been having falls. staff were viewing them as behavioral, and a doctor had prescribed Zephra which was noted to increase falls. Could he tell me about Robin’s situation. He said he was surprised to hear about falls, as she had recently been in, and no one mentioned falls. He said Robin has arthritis in both of her knees. Surgery would be a nightmare and not fix her problems. I said that some of the falls for instance, had been in the bathroom, and were being questioned. His words so stood out, that I wrote them down: “As long as Robin walks, there will be falls. Robin should keep walking.” He said that falls were possible due to her gait, and her knees. When I spoke to behavior, he said, “what our happy Robin?” He said that staff should be taking safety measurements. I stated there was a tendency to place blame on behavior, and take her to a doctor who increased Zephra. He said to avoid that. I then went back and looked at the Star reports of Robin’s last visit with him. No falls were noted. Why? The staff notes state, “use gait belt prn for balance.”

Today, March 4, Robin made her usual call in the morning around 8:00AM. I didn’t hear from her after, which is unusual. I called the house line, and T answered. I explained that I was concerned that I hadn’t heard from Robin. T said it had been a tough day there. Another resident had fallen, and had to be transported to the hospital. She said at one point today, she heard Robin call, and she found her on the floor in the bathroom, and crying. She said when she asked Robin what happened that Robin said she didn’t know, but she said she wanted to lie down. I thanked T for helping her, and acknowledged what must have been a tough day. I told her I had talked to Dr. P earlier in the week, and he had said that as long as Robin walks there will be falls. She said she would note the fact that I had talked to Dr. P, for (group home assistant manager). I hope that you call for the report on this incident, on the new approved forms, and provide a copy to me.

I spoke to Robin later, and told her that I had talked to T, and I heard that she had a fall. I asked her what happened. She said, “I was sitting on the toilet. I tried to get up to pull up my pants, and I fell.” She started to cry. I told her not to worry that she wasn’t in any kind of trouble, and that those things happen. I asked why she couldn’t tell staff what happened, and she got quiet, and said “I don’t know.” I wonder what the problem is?

I’ve had it. I have failed to help my daughter. Go through the old day reports and review bruising, a little blood on the lips, a fall in a closet while getting her coat and a black eye that kept her home for 4 days on staff advice, falls entering the van, on side walks witnessed, and one tooth knocked out, and another loosened that may have to be pulled, failure to follow training guide lines in reporting seizures, Robin’s confusion as to what is happening and not wanting to report what actually happened to staff, Robin mouthing words that only staff use – with staff reporting it, and a hospitalization where the guardian’s words and roles were diminished by (group home operator) staff, - to such a point that hospital won’t listen, Medicare and Medicaid pay for an 8 day hospitalization that never should have been, and the guardian has tried valiantly to take care of her daughter, and even court orders are ignored.

What next from the guardian:

*I obviously have secured the hospital records.

*This week, I will provide the necessary paper work to Norwalk Hospital to secure the financial records. I believe as I move forward, that it would be helpful for all concerned parties to know just how much the hospitalization fiasco cost Medicare and Medicaid. C. B (group home operator housing manager) was advised by me at 3:30PM on November 30th that I would not allow Dr. T to move forward with treating Robin in the hospital. She ran over me with her verbage, and failed to contact (group home assistant manager) and (the ever present "L"), prior to admittance.

*This week, as soon as possible I will send documented guardian requests to (group home operator) and ask for the names of the team members who decided on November 20, after a fall in morning at (group home), and a long delay to take Robin to Norwalk Hospital. I also request all record of communication to Dr. T’s office, that day, leading up to the hospitalization. Additionally, I would like all meeting notes from the team that meets ongoing, as noted on a document prepared by (yes the famous L) , with a transmission date on the top of Feb. 20, 2018 – No. 4285. Additionally, I will ask to be provided contact information for the Human Rights Committee mentioned in (group home operator) forms.

* On February 26, 2018 I sent requests for all records, with proper guardian documentation and ID, certified mail return receipt, to Dr. T, Dr. MA (hired consultant to the group home operator who told me the records had been cleaned up prior to the first court hearing - lied) (two addresses), and Dr. S.

*Since November 23rd, I have met with my local probate attorney who also has a disabled son, for advice and counsel. He has suggested that I go back to court in CT, and provided the name of an attorney. I intend to secure all records requested, attend the annual planning meeting by phone, continue to demand the records I have requested, and by the end of April with no resolution, and violations to the court order already on record, hire a CT attorney, and go back to court. I will fund the expense of that attorney myself.

Thank you for your time and consideration.